Randomness

Geesh, it's been a while!! I've been busy the past few weeks. First my mom was visiting from Colorado then the day after she left, my in laws arrived! Lots going on!!

Well the school year is winding down and I swear we are as busy as ever! Even worse is that our summer is looking to be crazy too! Camps, summer school, vacations, visits from Casey and doctor appointments have already consumed most of the summer months! I have already purchased a pool pass for Rileigh and myself. This is the first year I've bought one. I was going to just get it for Ri since my wonderful neighbor, Carrie, said that she would take Ri to the pool with her anytime they were going. I decided to add myself because it really wasn't that much more and I'm hoping that it'll force me to go. I don't think I went once last year but that was due to the fact that I had no one to do respite for Gabby. I am so lucky to have an awesome respite person signed up for the summer already!!! Miss Rachel is an associate in Gabby's Functional Skills room and she was nice enough to agree to work with Gab's this summer (she's also doing respite for one of the other boys in her class too!)! I think this will be the first summer where I'll be 100% comfortable leaving her! Rachel is awesome~ so sweet and patient~ I couldn't have asked for anyone better!!

Speaking of Gabby, I think a poop update is waaaaayyyy overdue! I know you are all so anxious to hear if the poop issues are on going!! Well, I am so happy to report that there have been some significant improvements!! Since we have stopped giving her such big bolus tube feedings and she's actually eating more real foods, she has only been having one big blow out a day and it's usually first thing in the morning. I go in to get her out of bed saying "Good morning Stinky!" I have been super pleased with this! I no longer fear going out to eat or taking her out and about! She is going to see a GI specialist in June because there is some concern that she isn't digesting her food properly, but I don't think that's any huge deal, they would just need to give her some enzymes or something. Her seizures have been inconsistent as usual, but she has had a few seizure free days here and there, we are always thankful for those!!! Her ketogenic dietitian, Stella (at Children's Hospital in St. Paul), has been such a great help. She is so positive and encouraging, I don't know if I could have kept up with the diet if it hadn't been for her support!

One last bit of news~ Casey is getting his wisdom teeth out tomorrow. They have been bothering him for years causing headaches and tooth pain. They are so impacted that the dentist told him his jaw bone is going to be very fragile and there's a possibility that it may break. Ugh!! So please keep him in your thoughts and prayers. It sucks that I won't be there to help him, but he is going to stay with his Uncle Wally ,who lives in Seattle, for a few days while he recovers. I remember getting my wisdom teeth out. It was horrible, almost as bad as giving birth (in my opinion!!). Hopefully he'll be ok!